Tuesday, October 9, 2012
Myffy's Birthday, a new medical mystery and getting ready for Disneyland!
Myffy's party was super fun. We decided to keep it small and a bit on the down low since that is what usually works best for both kids. In the past when we have packed the house for a party that is usually when Lu gets overwhelmed and needs to retreat, and even Myffy seems to prefer smallish play dates to having tons of people around. And this way everyone got to have a couple of turns on the pony.
I love how happy she was to be up there and she even said 'yeehaw' and 'giddyup' like Jesse from Toy Story, and then said 'more riding horse Mom,' when she wanted another ride. Gotta love an expanding vocabulary!
But back to the headaches: her dental xrays came back with a little decay showing, not enough to cause pain and not even enough to warrant filling right now. The dentist suggested filling it at her next cleaning which he thinks he can do with versed. Otherwise we have to book her into the hospital with full anesthesia to have a small filling done. The new pediatrician wanted to rule out dental pain before xraying the sinuses and then moving on to other imaging, like MRI or CAT scan. And then there is the possibility that she might be developing migraines. Both her paternal grandmother and a paternal aunt have migraines. Which of course won't show up on any of these scans. The symptoms are affected by a dose of children's ibuprofen which I though would rule out migraines, but the doctor says not necessarily.
This is one of those many, many moments when I wish that Lu could communicate enough to at least tell us a little more about this pain. Where is it? What does it feel like? Is it there all the time and just gets worse and better or does it completely come and go? Is it all of a sudden or does it slowly build? Is it a sharp pain, or more like pressure?
Oh and then yesterday I got a note from school in her bag saying that they tried to test her eyes and recommend that she see an eye doctor. One more possibility. If she has vision problems, that could be causing pain too, right? So today my list is full of new appointments to make and new conversations to have with various doctors. And probably a call or two to the new secondary insurance company since we were informed last month that Lu's old Medicaid insurer Capstone (who we never had a single problem with) was suddenly no longer her insurer.
In more exciting and upbeat news we are also starting to prepare for our long awaited trip to Disneyland! I've ordered Lu's tube feeding supplies to be delivered early and her prescriptions as well. I've started making checklists for packing to make sure we have everything we will need for the kids and Dahanna for as many contingencies as I can imagine ahead of time. I need to find out where the closest stores that carry allergen free foods are relative to the hotel and figure out which foods to just bring with us. I'm nervous but excited. I really hope they will love it. Fingers crossed!