Friday, January 28, 2011
I Have to Admit It's Getting Better, It's Getting Better All The Time
Myffy did her first day of ABA last Saturday and has done it everyday since, just like Lu, and she's doing awesome. It's tough. She's always wanted to get up into Lu's chair because Lu got so much attention in the chair, but now that she's really there and has to stay and do work, well, it doesn't seem quite as exciting anymore. But she has had a lot of success and it's so cute to see her clapping and cheering for herself along with everyone else when she matches objects or imitates gestures. Go Myffy go! Go Myffy go!
I'm also really excited about the new Lineagen Genetic testing kit that I just received in the mail. My original intention was just to test Myffy, but after talking to a genetic counselor on the phone for awhile we decided to test Lu first since she has the confirmed diagnosis and see what comes up for her. Only about 20% of the test groups with a confirmed diagnosis of Autism test positive for the exact chromosomal abnormalities targeted by this test, so it's far from a sure thing, but considering our family history, Lu is a good candidate. If something shows up for her, then we'll test Myffy for the same thing. So we'll see how that goes. The point of doing the testing is to be able to get Myffy services earlier than Lu did witihout needing to demonstrate as much of a delay. Because the thing is that Myffy is really quite advanced for her age. She has a relatively large vocabulary and a lot of skills. In order to be eligible for the program that Lu is now benefitting from Myffy would need to either demonstrage a 50% delay for her age (which I don't think she has at the moment) or have an established condition, like chromosomal abnormality (Downs Syndrome for example or the Fragile X category of Autism) that puts her into an At Risk category for Developmental Delay.